Lorna Rothery spoke with Victoria Hedley, co-lead of the Rare Disease Research UK Hub, about initiatives aimed at advancing the agenda for rare diseases, as well as the importance of facilitating cross-border collaboration to promote best practices and advance critical research.
Rosienne Farrugia from the University of Malta explores the role of high throughput sequencing (HTS) in rare and complex diseases, including the move towards...
Professor Ruth Ladenstein from SIOPE (the European Society for Paediatric Oncology) discusses how ERN PaedCan facilitates effective cross-border healthcare
The European Commission launched 24 different...
Kit C.B. Roes from the University Medical Centre, Utrecht outlines why clinical research in rare diseases requires swift implementation of new methodology
The European Confederation of Pharmaceutical Entrepreneurs (EUCOPE) is Europe’s principal trade body for small to medium-sized innovative companies working in the field of pharmaceuticals....
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